Priority #1: Under the President's New Freedom Initiative, The HRSA, MCHB is charged with the responsibility to develop and implement a plan to achieve appropriate community based service systems for children with youth with special health care needs(CYSHCN)and their families. As part of this plan, HRSA has developed the following six performance outcomes for monitoring community based service systems: 1) Families partner in decision-making and will be satisfied with the services they receive; 2) CYSHCN receive coordinated ongoing comprehensive care within a medical home; 3) Families of CYSHCN have adequate private and/or public insurance to pay for the services they need; 4) Children are screened early and continuously for special health care needs; 5) Community-based service systems are organized so families can use them easily; and 6) Youth with special health care needs receive the services necessary to make transitions to adult life, including a!
dult health care, work, and independence. To measure progress in achieving these six outcomes, MCHB has developed a monitoring strategy that utilizes two national surveys of children's health: the National Survey of Children with Special Health Care Needs (National Survey of CSHCN) and the National Survey of Children's Health (NSCH). This initiative will support a cooperative agreement to provide national leadership to the Division on collecting, interpreting and integrating valid and applicable evidence related to the implementation and monitoring of each of the 6 core components of community based systems of care for CSHCN. The Cooperative Agreement will: 1) identify sources of valid evidence for each of the 6 core components; 2) appraise the evidence for validity and usefulness for each of the 6 core components; 3) develop issue briefs and reports in formats that are useful to key audiences and disseminate the evidence to these audiences, including but not limited to !
families, providers, researchers, clinicians, state agencies, private
and public health insurers, and other MCHB funded grantees; 4) provide technical assistance to families, employers, providers, policymakers, and other MCHB grantees on translating the evidence into practice; and 5)analyze the results of the National Survey of CSHCN and the NSCH, develop issue briefs and reports related to the findings of these 2 surveys and assist in any modifications made to these surveys.
Priority #2: A cooperative agreement to provide national leadership to the MCHB's DSCSHN on implementing the health insurance and financing performance outcome. The National Center will 1) develop and disseminate resources such as policy briefs, chartbooks, and reports on trends, issues and federal and state legislative proposals related to health insurance and financing for children and youth with special health care needs (CYSHCN); 2) promote an understanding of the utilization and service patterns of CYSHCN and the reimbursement strategies needed to assure access to care; 3) provide a forum to stimulate discussion with employers, providers, families, public agencies and insurers about financing options for covering the services needed by CYSHCN 4) support communication and provide technical support as needed to state implementation grantees; 5) provide technical assistance to key stakeholders, including but not limited to the State Title V Children with Special Health !
Needs Programs, health plans, families and providers; and 6) work directly with public and private health plans to promote the link between financing and quality of care initiatives for CYSHCN.
Priority #3: The MCHBs Division of Services for Children with Special Healthcare Needs (DSCSHN), The Division of Child, Adolescent and Family Health (DCAFH) and The Division of Research, Training and Education (DRTE) will collaboratively fund a cooperative agreement for establishing a National Resource Center for Cultural Competence. The DSCSHN's Integrated Services Branch (ISB), through it's Family/Professional Partnerships priority, will administer the cooperative agreement with components to support and serve: (1) children and youth with special health care needs (CYSHCN), and their families; (2) DCAFH's Infant and Child Health Branch's Sudden Infant Death Syndrome and Other Infant Death Syndrome (SIDS/OID) and (3) DRTE's Training Branch's training programs. The purpose of the center will be to: (1) increase the capacity of health programs and their partners to design implement, and evaluate culturally and linguistically competent CYSHCN and SIDS/OID service delivery an!
d support systems; (2) promote the establishment of a national "community of learners and mentors" to incorporate cultural competence in State implementation efforts around the six core outcomes of a service system for CYSHCN and their families, systematically involving consumers, key stakeholders and communities; and (3) enhance training curricula, and recruitment and retention of culturally and linguistically diverse trainees and faculty in MCHB funded training programs. Activities should incorporate the values and principles of cultural competency, family-centered care and family/professional partnerships in all aspects of policy making, administration, practice, service delivery.
Priority #4: The Integrated Services Branch (MCHB/DSCSHN) Family/Professional Partnerships priority will support a cooperative agreement for establishing a family led national "community of learners and mentors" to assist State Title V Children with Special Health Care Needs Programs and their partners implement statewide family networks and Family-To-Family Health Information Centers. The purpose of these networks and centers is to: (1) provide health care information and education to families of children and youth with special health care needs (CYSHCN) and providers at the community level; and (2) collect data identifying family unmet service needs related to the six core components of a service system for CYSHCN. The national center will support these efforts through technical assistance, consultation and linking mentor family/center consultants and other MCHB funded national centers with family programs needing infrastructure building and planning assistance to become!
viable Family-To-Family Health Information and Education Centers. The overall goal is to implement the core component of a system of care for CYSHCN: families of CYSHCN will partner in decision making at all levels and will be satisfied with the services they receive.
PRIORITY #5: The purpose of this initiative is to support statewide implementation of the HRSA component of the President's New Freedom Initiative to create inclusive community-based systems of care for children and youth with special health care needs. Under this initiative, HRSA's MCHB has the lead in developing and implementing a plan to achieve appropriate community-based service systems, as defined by the following components: (1) family/professional partnership (2) comprehensive health care through a medical home (3) access to adequate health insurance/financing (4) early and continuous screening (5) organization of community services for easy use by families, and (6) transition to adult health care, work, and independence. This program replaces previous initiatives which addressed each of these systems components separately. Applicants must: (1) be, or work closely with, the State Title V Program for Children with Special Health Care Needs, (2) have a complete sta!
tewide needs assessment that addresses the State's status in each of the 6 systems components (3) implement a specific plan to achieve community systems of care incorporating each of these components, (4) integrate the plan into the Title V Block Grant and other public/private programs serving CSHCN and their families, and (5) define a comprehensive evaluation plan using national, state, and community data
Who can apply:
Eligible functional categories:
Maternal and Child Health Federal Consolidated Programs
If you have problems accessing the full announcement, please contact:
Department of Health and Human Services, Health Resources and Services Administration, HRSA Grants Application Center, 901 Russell Avenue Suite 450, Gaithersburg, MD, 20879